Pulmonary Hypertension Online Awareness Day

Worldwide May 5!

Alex spreading awareness online
 

 RSVP

Facebook event -OR- Online form

 
 
Use sample messages
 

We're going global on the World Wide Web! A day of worldwide action online. We have made participating easy with plenty of ideas below and sample messages for you to use. Even without social networking, you can share through email or by posting your story on our website.

Get Started Today!

RSVP

Let us know you are participating by RSVP'ing (on the right) so you are counted when we demonstrate the power of our numbers.

Facebook

  • If you haven't already, like World PH Day
  • Update your status with a message about PH. Use our sample messages to get you started.
  • Change your profile photo to our World PH Day image in our photo albums
  • Change your cover photo to our World PH Day cover photo in our photo albums
  • Share and/or like World PH Day posts we share with you

Twitter

  • If you haven't already, follow World PH Day tweets @WorldPHDay
  • Tweet about pulmonary hypertension and early diagnosis. Use our sample messages to get you started.
  • Retweet World PH Day tweets
  • Tag us in your tweets @WorldPHDay
  • Use the hashtag #WorldPHDay

Blogging

  • Share your story, including the obstacles you faced and how many doctors you saw before you were finally diagnosed.

Email

  • Send an email to your friends and family about pulmonary hypertension, its symptoms, and the need for early diagnosis and access to treatment. You can use our sample messages and information from our World PH Day website to create your message.
  • Do you have family and friends who are eager to get involved? Ask them to participate in Online Awareness Day and World PH Day

Instagram

  • Add us @WorldPHDay
  • Use the Hashtag #WorldPHDay

Spread Awareness All Day Long & Beyond

We encourage you to continue to spread awareness online and in your community throughout World PH Day.

Symptoms of PH

  • Breathlessness on exertion
  • Chest pain (also called angina pectoris)
  • Dizziness upon standing, climbing stairs, straightening up from a bent position, or even while just sitting
  • Fainting (also called syncope)
  • Loss of energy
  • Swollen ankles and legs (also called edema)
  • Depression
  • Dry cough
  • Raynaud’s Phenomenon (chalky white and/or dusky blue fingers that may be painful and can sometimes be provoked by the cold)

PH by the Numbers

  • Symptoms of PH are often mistaken for those of less serious conditions, such as asthma.
  • Many patients spend 2-3 years seeking an accurate diagnosis.
  • Delay in diagnosis can be fatal; without treatment, the average life expectancy with PH is 2.8 years.
  • Many patients will see 3 or more different physicians over a 3 year period before they are properly diagnosed with PH.

The information provided on the World PH Day website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

For the best viewing experience of this site, it is recommended that you use Internet Explorer 8 or higher or Firefox.

General inquiries: International@PHAssociation.org | Technical website issues: Webmaster@PHAssociation.org

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