sHARE your wORLD ph dAY stORY WITH THE MEDIA

The face of the pulmonary hypertension community is built on the personal stories of thousands of patients, caregivers, friends and medical professionals. By sharing your stories with the media, you can educate others about PH and the need for earlier diagnosis, more effective treatments and ultimately a cure.

The World Pulmonary Hypertension Day story is your story. No matter what your connection to the disease, you can use your personal experience as a hook to get local media interested in covering PH. The steps and resources below can help you get started.

World PH Day Resources

Sharing great resources educates reporters about basic PH facts, so that you can focus on telling your own PH story.

If you are meeting with a reporter and want materials to leave behind, request a press kit by emailing PHAware@PHAssociation.org (U.S. only)

1. Create a Media List

A media list is a list of reporters at local media outlets and their contact information. Identify reporters who would be likely to cover your story. Different angles of a story may be of interest to different reporters at the same media outlet. For example, when pitching your story in connection with World PH Day, you can emphasize a health angle to a health reporter and a human interest angle to a feature reporter.

2. Share Our Resources and Materials

Afraid someone will ask you a question about pulmonary hypertension that you can’t answer? Don’t worry! There are plenty of resources you can share with reporters. See the box on the side for links helpful materials or to order a press kit. Sharing these resources is a great way to educate reporters about basic PH facts, so that you can focus on telling your story.

3. Prepare your pitch

It's important to think carefully about your pitch to reporters because the pitch is your chance to convince a reporter that your story is worth covering. World PH Day is a great opportunity to tie your experience with pulmonary hypertension to a timely worldwide event. If you're not sure what to put in your press pitch, check out this sample pitch.

4. Submit your pitch

Email your pitch idea to the contacts listed on your media list. Send all information in the body of the email; don’t use attachments.

5. Follow-up with the media outlets

Reporters can be busy, so you may not get an immediate response to your pitch. Follow up after about two days with a phone call to remind them of the story opportunity. When you call, ask if they received your email (they may not remember it). Be prepared to re-state your pitch in a few sentences and to re-send related materials if they are interested.

Questions? Contact Elisabeth at PHAware@PHAssociation.org.

Worldwide Photo Mosaic

Everyone in the PH community from across the globe is sharing their photos to honor World PH Day to stand together in the fight against pulmonary hypertension.

Add your photo to the mosaic

Raise Awareness Online

We're going global on the World Wide Web with a global day of action online for World PH Day.

Learn how you can participate

PH by the Numbers

  • Symptoms of PH are often mistaken for those of less serious conditions, such as asthma.
  • Many patients spend 2-3 years seeking an accurate diagnosis.
  • Delay in diagnosis can be fatal; without treatment, the average life expectancy with PH is 2.8 years.
  • Many patients will see 3 or more different physicians over a 3 year period before they are properly diagnosed with PH.

The information provided on the World PH Day website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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